Keaton’s Surgery
Here are some pics of keaton going to surgery, and also a couple of parker. Parker’s were actually taken at home. Before Parker went in for his steroid injections, the nurses gave him the little gas mask to show him what the doctors would do when he got in the room. That way he doesn’t freak out quite as much, because he knows what to expect. Anyway, he was excited he got to keep the gas mask, and brought it home to show Jaxon.
I have come to the conclusion that one of the saddest places anyone could visit is a children’s hospital. It’s always so humbling going there. We went to check-in for Keaton’s surgery, and I was fine for all that part, but then they wanted Keaton to get in the little tiny hospital gown they have for the kids, and I didn’t even want to do that part. He got in his gown, and after a few minutes of blowing bubbles he asked me if I would put his shoes on so we could go home. They have you check-in in one room, then take you to another place to change, and then they take you to another waiting room. The last waiting room is where the actual surgery process begins. They give Keaton a medicine that starts to make him tired, and it’s supposed to make it so he won’t remember much about the surgery. Keaton still wanted to play with the toys, so I had to make him sit on my lap, because of how sleepy it makes the kids. So, after that they bring in a little red wagon with a pillow and blanket, and once they are tired enough or it’s time to go they lay down in the wagon. Then, the anesthesiologist comes and gets us, and we get to pull the wagon to the doors of the operating room, and there you say good-bye. I don’t know what it is, but every time I have had to do that, I always stand there at the doors trying not to cry. I am getting better at holding back the tears. Then, the parents are herded to an adult waiting room, and there you sit with a bunch of other parents with the same worried look on their faces. Doctors come in and out of this room and update the parents on the status of their kid, and then when they are finally done one of the nurses comes and says one of the parents can go back to be with the kid. They only let one parent go back while your kid is waking up. After your kid wakes up (or wakes up screaming is more like it), then they take you to yet another room. In the recovery room they let two adults in with the kid. So, that’s the point when Scott gets to join me. Then, while your kid is crying and screaming you have to try and get them to drink some juice or eat a popsicle to see if they are well enough to go home. For Keaton, he decided to go back to sleep when we got to that room, and so we were there for quite a while. He finally woke up, and he did not want to eat or drink anything at all. We finally had to force him to eat some popsicle so they would let us go home. Keaton didn’t open his eyes for the rest of the night. That’s got to be so confusing for little kids. The last thing they remember is playing with toys in a waiting room, and then they wake up in a weird room, with lots of weird people, and they are in pain. We finally made it home, and it was a pretty long night. Keaton woke up all through the night, but it was pretty easy getting him back to sleep, so that was good. He is doing good now. His eyes are still swollen, but he did open them this morning, and he’s been playing today. We went to see the doctor for his post operation visit, and the doctor said it looked good, and hopefully it keeps going like it is. So, this whole surgery just brought back lots of other memories. Our family life has been filled with doctor’s visits. The horror of seeing your kid with tubes all over them is not easy to explain. I remember Jaxon’s whole thing. Most of you already know, but when Jaxon was 10 months old (he was walking already) he woke up one morning, and couldn’t use his legs at all. He couldn’t stand next to furniture, and couldn’t even crawl. We ended up taking him to the ER at primary children’s, and they admitted him to the PICU. What an awful week that was. They did 2 spinal taps on him, a bunch of blood tests, MRI’s and lots of other tests to try to figure out what the problem was. They thought he had the guillan barre virus. They had to put an IV in his head. Now that was one experience I hope I never have to relive. They never did figure out Jaxon’s problem for sure, but miraculously he started gaining the strength and use of his legs again. Then, there was Parker who woke up one morning limping. His turned out to be juvenile rheumatoid arthritis. He’s had to go in and have steroid injections, and even though it’s a fairly simple process, I still hate it. I go in with him while they give him gas that makes him go to sleep. It’s another one of those times you are just hoping you don’t let all the tears loose that are forming in your eyes. Now we give him his chemo shots once a week. The chemo makes him sick to his stomach, and I hate seeing him like that, but we really don’t have too many other options. Then, of course we have Keaton. He had a stroke…they think it happened before he was born. So, he goes to physical and occupational therapy to try and get the left side of his body to work. And, here I am just trying to make it some days. I can’t believe the crazy, wild life we’ve had. Much crazier than I really like, but I must admit, through it all, it’s also been incredibly amazing. It’s impossible to explain in words all the emotions and rollercoaster ride we have been on. We have seen miracles and just had so many blessings. Going to all the appointments and struggling through all the craziness has been extremely humbling. And, seeing all the other kids with their problems has actually made it easier to accept my kids’ problems. When Keaton goes to physical therapy, I almost always see other kids coming in with little walkers or other problems like that. Thankfully, Keaton can walk and use his leg. The left side of his body does not work as well as the other side, but it does get him where he wants to go. I talk about this so much, that I’m sure some of you are sick of hearing about it, but it’s my life, and I am constantly forced to think about it. It’s not possible to escape the harsh reality of it all. But, one day I would like to sit and list all the miracles that have happened, too. There are too many to count, but I have tried to keep a journal of the ones I remember. On the surface it might seem like what we’ve been through has been unfair, but I know everyone has their own trials, and we are not alone in this “journey we call life.” I’m just grateful for everyday we have together as a family.












































