The pic has nothing to do with this post. I just thought I would update everyone on how Keaton is doing. It’s actually been a really tough week for the little man. Last week they put a cast on his left leg. They were doing the casting along with the botox, because the botox is supposed to loosen up his leg, and then they cast him and hopefully get his leg stretched out a lot and loosened up. Well, they put the cast on him and from the minute we got home, he complained about that cast. I kept checking his toes to make sure he was getting the circulation, and it wasn’t too tight and his toes were fine, so I couldn’t figure out what his problem was. He kept telling me it was “tickling.” It turned out to be a horrible week for both of us. He cried so much and I didn’t know what to do, and he was just miserable. When it was time to take the cast off, he was super excited and after it was off, the bottom part of his shin was noticeably red, and swollen and the bottom of his foot had sores on it. So, then the next day we were supposed to take him in to get his second cast on. He was understandably upset, and was crying all the way to the appointment. In the waiting room he was still mad, but at least sat still. The therapist called Keaton’s name to go back, and I stood up and picked Keaton up, and he started punching me, and trying to get away. The therapist checked out his leg and couldn’t decide if she should put another cast on him or not. She finally decided to put another one on and put extra padding on all the sore spots. But, the bad news about all this is that Keaton’s leg is extremely tight. It hasn’t loosened up at all. The therapist said she was putting all her weight on him to try and bend his ankle, and she only got his ankle to neutral. Even with the botox, he’s still super tight. So, it’s frustrating. I don’t know what the next step is. The therapist mentioned maybe a heel cord lengthening, which involves surgery or a rhizotomy (also surgery). It was depressing. I hate the thought of having to do the whole surgery stuff. Then, earlier that day we went to Keaton’s eye appointment and that was all bad news, too. The doc asked me if his eyes were crossing with his glasses on and I told him I didn’t think they were, but then they measured his eyes with his glasses on and his eyes are crossing really bad. I felt pretty dumb, because I haven’t noticed it. How could I not notice that?? So for now they are trying a stronger prescription and if that doesn’t work???—You guessed it, eye surgery. I came home and was somewhat upset. I can’t stand the thought of them having to put Keaton out for surgery, but I guess you do what you have to. So, yeah, it’s been one of those weeks….You can’t have good news all the time I guess. It’s just another bump in the road and we’ll get through it. Just maybe keep your fingers crossed and we can avoid surgery. I’m not too hopeful though. I think we are headed straight for a looooooooooong crazy surgery road. Just wish us luck….or kiss a fish for us.

Posted on November 25